Guide To Embedding Health Literacy

This guide is for health professionals and policy makers and will help to embed health literacy in the work and governance of your organisation.

Who is this guide for?

This guide is for health professionals and policy makers. It is targeted at health service, facility and practice managers, health executives, quality managers and policy makers. However, health literacy is relevant for everyone working in health.

Health organisations have an obligation under the Australian national accreditation standards to provide safe, quality care. This means using health literacy best practice. This guide will help to embed health literacy in the work and governance of your organisation.

This guide uses examples from health organisations around Australia.

This is not an extensive guide on health literacy best practice strategies. For more information, see the resources section.

Why should we embed health literacy in to our organisation?

There has been significant research on the benefits of improving health literacy to the individual, the health practice/facility/service/organisation and the health system as a whole12.

Health literacy is important because it shapes people’s long term health outcomes and the safety, quality and cost of the care they receive2.

Health literacy helps people:

  • Navigate the health care system, find the right health services and get to appointments
  • Manage chronic health conditions
  • Follow medication instructions
  • Keep up a healthy lifestyle and take up preventive health care like immunisations and cancer screening
  • Access, understand and act on health information
  • Share their medical history, fill out forms correctly and use their online My Health Record.

On the other hand, low health literacy is associated with:

  • Poorer quality of life and health outcomes for consumers
  • Poorer health care experiences
  • Low satisfaction with care
  • Higher use of services2.

Improving health literacy is essential for safe and quality care. Health Literacy criteria are included in the National Safety and Quality Health Service Standards3 and the Royal Australian College of General Physicians Standards for General Practices4.

Addressing health literacy is part of person-centred care. Being able to access, understand and use health information to be involved in care decisions is a consumer’s right5.

Consumer involvement in the way your organisation, service or practice operates will allow you to meet the needs of consumers and lead to better outcomes.

Improving health literacy is an organisation wide responsibility. Everyone has a part to play. Embedding health literacy in policies and other governing documents will demonstrate commitment from the organisation, and go a long way to embedding health literacy in to the culture of the organisation.

Consumers: People, families, carers and communities who are current, previous or potential users of health services6.

Examples of embedding health literacy into organisations

Example: Sample Health Literacy Policy Statement, sourced from Tasmanian Department of Health

We are committed to making health literacy and good communication integral to the mission, structure and operations of the [name of organisation]. We acknowledge that:
  • Consumers have a right to information: it is the responsibility of healthcare providers to communicate effectively and check consumers’ understandings of information communicated.
  • Consumers have a right to be involved in decision-making about their health and wellbeing.
  • A service’s health literacy environment should support and empower consumers to make effective decisions and take appropriate action for their health and health-care.
  • We acknowledge that it is difficult to identify someone with poor health literacy and it is best to take health literacy precautions with all consumers.
We commit to:
  • all spoken and written communication targeting consumers will meet health literacy standards, be easily understood and tailored to the needs of people from a diverse range of backgrounds
  • Offering staff health literacy and communication professional development activities
  • considering health literacy in project planning and environmental design of facilities
  • involving consumers in communication, project planning and environmental design of our services, and in the development of consumer information material
  • advocating for and supporting activities that promote literacy and health literacy. 

Example: Sample Health Literacy Policy, sourced from the Gippsland Guide to becoming a Health Literate Organisation

Definition Health Literacy is the degree to which a person has the capacity to obtain, communicate, process, and understand health information and services to make appropriate health decisions. A Health Literate Organisation is an organisation that is easy for people to access, navigate, understand and use information and services to promote and maintain good health. Policy Statement [Name of Organisation] is committed to:
  • Recognising the impact of health literacy on:
    • the health outcomes of individuals
    • costs to the health system
    • preventing chronic conditions
  • Addressing the health literacy barriers of clients and communities
  • Creating and maintaining an organisational environment that supports staff to develop and enhance their health literacy skills in order to empower clients and community members to improve their health
Policy Principles [Name of Organisation] will:
  • Foster a culture where both individual and organisational health literacy is considered part of all decision making within the organisation
  • Engage clients and communities in decision making processes
  • Build organisational capacity by providing health literacy training for all staff
  • Implement the 10 Attributes of a Health Literate Organisation framework [10]
Associated Policies and Procedures (examples)
  • Access and Equity
  • Advocacy
  • Client Rights and Responsibilities
  • Community and Participant Involvement
  • Health Promotion
  • Interpreting and Translating
  • Service Delivery – Key Components of Care
Associated Documentation (examples)
  • 10 Attributes of a Health Literate Organisation
  • The Gippsland Guide to Becoming a Health Literate Organisation
  • Accreditation standards mapped against the 10 Attributes of a Health Literate Organisation (Available in the Northern NSW Health Literacy Handbook)

Example: Commitment to Health Literacy in position statement, sourced from Health Care Consumers Association Position Statement on Health Literacy

[Name of organisation] will work
  1. with consumers and health services providers to identify their information and training needs
  2. to build the capacity of consumers, carers and community members in a number of ways, including the development of resources, delivery of information sessions and skills based workshops
  3. with staff of health services to enhance their ability to communicate clearly to meet the needs of consumers and carers.
  4. with staff of health services to standardise the development and provision of health information
  5. with the [state] Government and local health services to develop and implement policies, training programs and systems to improve the health literacy of people living in [local health area]
  6. to become a health literate organisation.

Example: Equity of Access and Health Literacy policy, sourced from South Western Sydney Primary Health Network

  Purpose The purpose of this policy is to outline [Name of Organisation]’s statement of intent for systematically considering health literacy and equity of access in all service planning, activities and evaluation processes. Policy [Name of Organisation] is committed to:
  • Developing, commissioning and implementing services which ensure equitable access for all of our community members.
  • Recognising the impact of health literacy on the health outcomes of individuals and communities, costs to the health system and the prevention and management of chronic conditions.
  • Addressing the health literacy barriers of individuals and community groups.
  • Creating and maintaining an organisational environment that supports staff to develop and enhance their health literacy skills in order to empower community members to improve their health.
  • Fostering a culture where both individual and organisational health literacy is considered as part of decision making within the organisation.
  • Engaging community members, including representatives of vulnerable groups, in decision making processes.
  • Ensuring that all materials for the community are written clearly, using appropriate language to enhance understanding and are tailored to the needs of the target group.
Health Literacy
  • Health literacy is the degree to which a person has the capacity to obtain, communicate, process and understand health information and services to make appropriate health decisions.
  • [Name of Organisation] recognises the significant impact that low health literacy can have on health outcomes. Low individual health literacy is associated with higher rates of hospitalisation and emergency care and with higher rates of adverse outcomes. It is also associated with lower uptake of preventative approaches like mammography and the influenza vaccine (Australian Commission on Safety and Quality in Health Care, 2014).
Equity of Access
  • Health equity describes a state in which there are no systematic differences between different groups in their ability to access high quality health services. [Name of Organisation] recognises health inequities as both unfair and avoidable.
  • Members in the following groups in [your local region/area] may have specialised needs and may experience health care access barriers: e.g.
    • Aboriginal and Torres Strait Islander people
    • People from a culturally and linguistically diverse community
    • Older people
    • Younger people
    • People living with a disability
    • People living with mental illness
    • socioeconomically disadvantaged people
    • people living in rural and geographically isolated areas
    • LGTBQIA+
  • Health literacy and health care access are intrinsically linked, with limited health literacy impacting a person’s ability to perceive and act on a healthcare need. [Name of Organisation] aims to be a health literate organisation to ensure all community members have equitable access to services we deliver or commission.
Applicability
  • All employees
Associated documents Roles and responsibilities
  • Executive – to foster an environment which supports consideration of health literacy and equity principles.
  • Management – to consider health literacy and equity principles in the planning, delivery and evaluation of services.
  • Staff – comply with the equity of access and health literacy policy in the planning, delivery and evaluation of services.

Example: Strategic Objectives of the Northern NSW Local Health District Kids and Families Plan 2017-2022 include the goal of “improving health literacy”.

Example: The Northern NSW Local Health District Strategic Plan 2019-2024 includes an objective to “improve health literacy”

Example: Guideline for developing and reviewing consumer resources

The Northern NSW Local Health District Guideline on Development of Health Information Resources (brochures, posters, digital media, web based resources, information sheets, audio files) covers the steps for developing a consumer information resource, including:
  • Searching for existing resources
  • Planning new resources
  • Consulting stakeholders
  • Developing new content
  • Meeting the checklist for consumer-friendly health information
  • Photography and media consent
  • Logos and branding
  • Considerations for web content
  • Aboriginal Health Impact Statement
  • Management approval processes
  • Distribution
  • Review
Contact the Northern NSW Health Literacy Team for the latest guidelines.

Example: Procedure for wayfinding audits, from Illawarra Shoalhaven Local Health District

The ISHLD way-finding audit allows staff to use consistent processes to partner with consumers to create signs and navigational cues that are easy to use and follow when accessing and navigating through health services. This document provides Site, Service and Quality Managers with governance processes and audit tools to conduct a Way-finding audit with consumers and partners. See the procedure, wayfinding survey for Integrated Care Services and survey for Hospitals. Email ISLHD-CGUTRIM@health.nsw.gov.au to contact the ISLHD team.

Example: Policy for policy writing, from Illawarra Shoalhaven Local Health District

The guiding policy document for the development of all ISLHD Policies, Procedures, Guidelines and Business Rules for health staff. The policy includes the use of Plain English principles and the inclusion of consumers in the evaluation of these documents.

Example: Healthy North Coast requirement for newsletter contributions from staff to be written at grade 6 to 8 level

  • Example: embed teach-back prompts into clinical workflows or staff forms
  • Example: Include mandate for discharge summaries to be written in plain language
  • Example: include mandate for service redesign and improvements to involve consumers
This could be part of a community or stakeholder engagement framework. Engaging consumers in quality improvement or redesign activities helps you meet consumer needs from the very beginning.

Example: Healthy North Coast Primary Care Impact Quality Improvement Pathway

Primary Care Impact supports primary health care services to implement quality improvement initiatives. As well as having a specific page for Health Literacy, there are health literacy strategies included in other topics, like wound care.

Example: Plan for health literacy evaluation

See the Northern NSW guide to health literacy in evaluation.
Example: Health Literacy Ambassador Program Business Case This brief to the executive of a local health service was written in 2019 to gain approval and support for the Northern NSW Health Literacy Ambassador Program.
Example: Northern NSW Health Literacy Framework The Framework focuses on five key strategies from improving health literacy in Northern NSW.

Example: Sample Health Literacy KPIs from the Healthy North Coast Women’s Cancer Screening Collaborative Project

Example: Possible KPIs list from Healthy North Coast Mental Health and Alcohol and Other Drugs Directorate

  Health literacy
  • Completion of organisational health literary assessment and health literacy action plan
  • Percentage of actions completed from health literacy action plan for service improvement
  • Percentage of practice staff completing health literacy training and/or teach back training
  • Number of education sessions delivered
  • Percentage of practice staff who do health literacy training reporting increased confidence to use health literacy strategies.
  • Percentage of staff who pass a teach-back competency assessment
  • Percentage of forms and resources assessed using health literacy standards
  • Percentage of staff completing cultural awareness training
  • Improvement in proportion of clients attending appointments
  • Improvement in patient reported experience
  • Improvement in patient reported outcomes
  • Number of shared decision making tools integrated into standard care practice
  • Proportion of clients who receive written summaries of their appointment and follow up
  • Number of case discussions including health literacy as a standard item
  • Number of identified health literacy barriers in case discussions
  • Development of policy to develop/review health information
  • Service information (brochures, website) includes information about accessing service including costs, transport and parking information, access to interpreters, what clients need to bring/have
  • Number of improved resources in use
  • Scripts developed for staff to guide common or complex conversations and in use by practice staff.
  • Uptake of community health coaching programs by various priority groups (KPI dependent on type of program)
Mental health literacy
  • Number staff (including reception and admin staff) completed mental health first aid training
  • Number of staff (including reception and admin staff) complete mental health literacy training.
  • Number of staff completed education about e-mental health programs available and how to refer to them
  • Intake processes reviewed with input from people with lived experience of mental health issues
  • Number of standard care pathways reviewed/co-designed with people with lived experience of mental health issues
  • Referral pathways developed for people with lived experience of mental health issues
  • Percentage of clients with a mental health action plan
  • Number of mental health peer workers in service referral system
  • Number of clients referred to mental health support services or specialist services
  • Uptake of community mental health education programs by various priority groups (KPI dependent on type of program)
  • Development of priority groups engagement plan
  • Percentage of clients engaged with service from priority populations
  • Percentage of service provider training co-delivered with people with lived experience
  • Number of clients referred to social prescribing programs
  • Number of activities addressing access and user equity
  • Number of new clients receiving service
  • Number of referrals received for service
  • Change in mental health assessment outcomes
  • Language in recall and reminder systems is reviewed for non-stigmatizing and trauma informed language
  • Number of mental health care plans sent to GPs

Example: Staff orientation video developed by Northern NSW Health Literacy Project

This video and others available from the Northern NSW Health Literacy website.

Example: Health literacy education as part of regular education calendar

  The Health Literacy Hub provides virtual education.   Contact the Northern NSW Health Literacy Team for copies of their education presentations.

Example: Evaluation criteria for tenders from Healthy North Coast

Applications to complete a project out for tender by Healthy North Coast must have all application criteria assessed against a scoring guide. Health Literacy questions in the criteria can be scored as excellent, good or poor.

Example application criteria: Outline how your service/program embeds health literacy best practice and improves health literacy within your organisation and for clients.

Scoring guide: Excellent: The plan will include activities specifically designed to make it easier for people to find, understand, assess and use health information and services in the region. It will include health literacy considerations in community engagement strategies. It will also use co-design with community in planning and developing new projects/materials/services. There is a plan to measure and document these activities. Good The plan will include activities to make it easier for people to find, understand, assess and use health information and services in the region. It includes limited health literacy considerations in community engagement (e.g. plain language, health literacy checklists for resources) and has limited plans for co-design. There is a limited plan to measure or document these actions. Poor The plan does not include or clearly describe activities to make it easier for people to find, understand, assess and use health information and services in the region. It does not include health literacy considerations in community engagement strategies or use co-design. There is no clear plan to measure or document these actions.

Example application criteria: Outline how your service/program is mental health literacy responsive. Include the measures you have taken to ensure your service is accessible and easy to use for those with low mental health literacy and low general health literacy.

Scoring guide:   Excellent: The plan will include activities to meet the diverse mental health literacy strengths, needs and preferences of all people. This includes activities to support individuals with mental health lived experience, their families and kinship groups, and communities to make decisions regarding their health and wellbeing, improve their service’s accessibility and effectiveness in understanding and supporting mental and physical health problems and improve equity and health outcomes for people with lived experience of mental health issues or caring kin and communities. There is a plan to measure and document these activities. Good Includes limited activities to support individuals with mental health lived experience, their families and kinship groups, and communities to make decisions regarding their health and wellbeing, improve their service’s accessibility and effectiveness in understanding and supporting mental and physical health problems and improve equity and health outcomes for people with lived experience of mental health issues or caring kin and communities. Does not focus on these areas as a priority.   Poor The plan does not include or clearly describe activities to meet the diverse mental health literacy strengths, needs and preferences of all people. There is no clear plan to measure or document these actions.

Example application criteria: Describe how you address organisational health literacy that ensures procedures and staff support health literacy best-practice.

Scoring guide: Excellent: Can demonstrate that staff undertake health literacy training. Evidence of organisational health literacy assessment and use of health literacy best practice e.g. Teach-Back, plain language. Evidence of use of co-design and consultation to improve their practice.   Good Have a plan for staff to undertake health literacy training and to conduct organisational health literacy assessment. Knowledge of health literacy best practice e.g. Teach-Back, plain language. Plan for co-design and consultation to improve their practice.   Poor No evidence of or plan for staff to undertake health literacy training or to conduct organisational health literacy assessment. Lacks knowledge of health literacy best practice e.g. Teach-Back, plain language.

Example application criteria: Demonstrate actions to improve health literacy have been taken and/or improvements in health literacy have been measured.

Scoring guide:   Excellent: There are at least 3 key performance indicators clearly linked to health literacy improvement. These may include but are not limited to:

  • Number or percentage of staff who have attended Health literacy training
  • Evidence of co-design and/or community consultation
  • Use of tools to measure improvement in printed and digital resources
  • Organisational Health Literacy assessment complete and action plan in place
  • Use of PREMs and PROMs to demonstrate improvement in client experience and outcomes

Good There is at least 1 key performance indicator clearly linked to health literacy improvement   Poor No relevant health literacy key performance indicators.

Example application criteria: Demonstrate your experience in improvement of organisational health literacy and detail actions you have taken to improve client’s health literacy. Include description of outcomes. 

Scoring guide:   Excellent: Demonstrates comprehensive health literacy actions already taken by the organisation, including Health literacy policy/action plan in place, Staff health literacy training, Use of teach-back, plain language or other health literacy strategies, Evidence of co-design or community consultation/feedback and resulting actions. Includes outcomes of these actions including organisational change or improved patient measures.   Good Demonstrates some health literacy actions already taken by the organisation.

This may include any of the following: Health literacy policy/action plan in place, Staff health literacy training, Use of teach-back, plain language or other health literacy strategies, Evidence of co-design or community consultation/feedback and resulting actions.   Poor No health literacy actions taken by the organisation.

Steps to embedding health literacy in to your organisation

Your goal is to achieve the Ten Attributes of a Health Literate Organisation:

  1. Has leadership that makes health literacy integral to its mission, structure and operations
  2. Integrates health literacy into planning, evaluation measures, service users safety and quality improvement
  3. Prepares the workforce to be health literate and monitors progress
  4. Includes populations served in the design, implementation and evaluation of health and related information and services
  5. Meets the needs of populations with a range of health literacy skills while avoiding stigmatisation
  6. Uses health literacy strategies in interpersonal communications and confirms understanding at all points of contact
  7. Provides easy access to health and related information and services and navigation assistance
  8. Designs and distributes print, audio-visual, and social media content that is easy to understand and act on
  9. Addresses health literacy in high-risk situations, including care transitions and communications about medicines
  10. Communicates clearly what health plans cover and what individuals will have to pay for services

  Use the Northern NSW Organisational Checklist or other relevant self-assessment tools in the resources section, to help you assess your health literacy environment. You can also consult a health literacy expert to help you assess your environment and make recommendations.

  • If you work in a state health district, contact your Clinical Governance Unit for advice.
  • If you work in primary care, contact your local Primary Health Network to find out if they have a health literacy program.

Now that you have assessed your health literacy environment and have the support of senior staff, you can make a plan to address some of the areas that need improvement. Putting policies, procedures and guidelines in place that address health literacy should be part of your action plan.    

Consider

What are you trying to achieve? How long will this change take to become standard practice? Who will have responsibility for carrying out the actions? How will you monitor your progress and success? Does your organisation have the capacity to change? What resources will you need to carry out the plan? Who are the stakeholders that need to be involved?    

Organisation-wide Health Literacy Plan

To have the most impact, develop an organisation wide strategy or framework to guide health literacy improvement. This will define the actions you will take over a number of years to achieve improvements in health literacy, as well as defining the scope of you work. The framework is a guiding document that you can refer back to when creating more detailed project plans, to make sure your work is aligned to the aims of the framework.  

Including health literacy in other organisation guidelines, policies, frameworks and documents

Include health literacy outcomes or actions in other documents in your health service to ensure health literacy principles are impacting all of your work. It could be an action or outcome specific to that document, or you could reference back to your framework or health literacy specific policies. Documents in the following areas could reference or include health literacy:

  • Quality improvement registration/planning process
  • Media
  • Consumer engagement
  • quality and safety protocols
  • person centred care
  • Accessible information
  • Consumer rights and responsibilities
  • Translating and interpreting services
  • Close the Gap
  • Plain language
  • signage
  • Access and equity
  • Tender applications
  • Contracts

Having the backing of managers, executive and other senior staff in your health organisation is essential to embedding health literacy into the organisational culture. You might want to present a business case for adopting health literacy policies or strategies. Start by discussing your idea with your manager. Then, depending on the organisation you work in, you might want to present a business case to senior staff, such as:

  • For organisation-wide health literacy programs – Managers and Directors of Clinical Operations, Clinical Governance, Integrated Care, Nursing and Midwifery or Health Promotion, CEO
  • For service or facility wide health literacy programs – Service or Facility Managers, Practice Managers, Quality Managers, Program Officers

Use the Clinical Excellence Commission’s (CEC) business case template in the NSW Health Literacy Framework to help you advocate to leadership. If this is not suitable for your organisation, you might want to review the evidence and put together your own case. Look in the resources section for relevant sources of information.  

Consider:

Why is it important to address health literacy in your organisation? Think about how this is related to national standards, state level frameworks, local strategies, consumer rights and your organisational values, and relate to the specific context of the work your organisation does. How will the organisation benefit by addressing health literacy? Think about the benefits to consumers, the community, the staff and the organisation as a whole. What will be the cost? Think about how this will impact care delivery, health care costs and health care usage in the short and long term. Many health literacy improvements are free, like including health literacy education in staff meetings. Some may require some dedicated staff time to implement. Other possible costs to consider may be:

  • Catering and venue for a health literacy workshop
  • design and printing of new brochures, forms or other resources
  • changing existing signs or installing new signs
  • paying consumers to be involved in co-design
  • hiring a Health Literacy Officer

What costs are you going to save by addressing health literacy in your organisation? What health literacy improvements are you proposing? You don’t have to have a whole program planned – you might start with leadership authorising staff to dedicate time to a health literacy environment assessment. Who will have responsibility for health literacy in your organisation? Who is going to help drive organisational change from the top down and ground up? Will there be one dedicated staff member, or a group of people to implement health literacy improvement? How do you know it will work? Use case studies of other successful organisations to demonstrate that embedding health literacy in to your organisation is possible.  

Resources

Contact us if you have any examples of your own work embedding health literacy into organisations or want to suggest a resource be added or edited.

References

  1. Australian Commission on Safety and Quality in Health Care. Health Literacy: National Statement on Health Literacy. ACSQHC; 2014. 
  2. Australian Commission on Safety and Quality in Health Care. Health literacy: Taking action to improve safety and quality. ACSQHC; 2014. 
  3. Australian Commission on Safety and Quality in Health Care. National Safety and Quality Health Service Standards. 2nd ed. Sydney: ACSQHC; 2017. 
  4. The Royal Australian College of General Practitioners. Standards for general 5th ed. RACGP; 2017.
  5. Australian Commission on Safety and Quality in Health Care. Australian Charter of Healthcare Rights. 2nd ACSQHC; 2019. 

All example works are linked to directly in this guide.

This guide has been made possible through funding from the Northern NSW Local Health District (NNSW LHD) and Healthy North Coast (HNC).

NNSW LHD and HNC acknowledge the traditional custodians of the lands that we live and work on. We pay our respect to the culture and to the Elders past, present and emerging.

Developed in 2021 by the Northern NSW Health Literacy Project Officer.

Website: healthliteracy.nnswlhd.health.nsw.gov.au

Email: NNSWLHD-HealthLiteracy@health.nsw.gov.au

Suggested citation: NNSW Health Literacy. Guide to embedding health literacy in organisations. Lismore: Northern NSW Local Health District; 2021

This work may be reproduced in whole or part for study or training purposes subject to the inclusion of acknowledgment of the source.

Acknowledgment

NNSW LHD and HNC would like to acknowledge the individuals and organisations whose work was used development of this guide. A full reference list can be found in this handbook.

JargonPlain Language
Pre-opBefore surgery
ECGElectrical picture of your heart
PRNWhen needed
SupineOn back
Discharge planningMaking a plan to get out of hospital
FastDo not eat during this time
SatsOxygen in blood
RestorationFilling
FractureBreak
PathologySomething is not working right
Verbal comprehensionUnderstanding what other people are saying
FebrileHigh temperature
IVFDrip
GaitWalking pattern
BilateralBoth sides
AbstainDon’t do
UF goalHow much fluid we want to take off
Primary health assessmentHealth check with GP
ProphylacticTo prevent
QID4 times a day
PivotChanging from an old strategy
AF(atrial fibrillation) Heart flutter/irregular heart rate
Nil by mouthNothing to eat or drink
Upper limbsArms
ScreeningChecking/testing
DyspnoeaShortness of breath
AnalgesiaPain relief

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